No, not my surgery. Tomorrow is the day I do catheterization education with Peyton. I have mixed feelings, because obviously it's going to go one of two ways.
1. she's going to flip out (like normal) not let me even attempt to try to do it and we're going to leave feeling defeated and figuring out what our next step is (vesicostomy). With me crying in the elevator, like normal.
2. she's going to be calm, and let me help her go pee pee so her cootie doesn't hurt anymore.
I'd like to be all puppy dogs and rainbows tonight (option 2), but really, what good is that going to do? The fact is i've seen her be cathed more times than I can count, and not once has it ever gone well. So, really I don't think that in my heart of hearts this is going to work.
That's not what I want to hear though.
Both girls had neuro follow ups today (BTW, it's MORGAN'S BIRTHDAY!!!). Hard to believe this time 1 year ago I had JUST given birth to her. She wasn't even 30 minutes old yet.
Peyton's follow up was good, she's atypical in her motor skills but we can't fix that, and i'm happy she has adapted. Cognitively she's very much so on track.
Morgan...ehhh not so much. She's like a 6 month old. We are going to give her more time, we know her brain MRI was normal. They ordered some labwork, somewhat neuro in origin I believe. Including a chromosome analysis, thyroid, etc.
If in 6 months she hasn't made significant progress she wants us to have extensive lab and workup done for neuro-muscular diseases.
Bleh.
Lets hope she starts to catch on!
Subscribe to:
Post Comments (Atom)
Good luck tomorrow! Maybe she will surprise you and things will go great!
ReplyDeleteI'm behind on my emails but I wanted to say that I really hope today went well!
ReplyDeleteTiffany-thank you so much.
ReplyDeleteSarah-not so much, you have an email waiting whenever you have time =(